Health Update

I saw my gastroenterologist and my dietician two weeks ago. Turns out I had misunderstood some things before. I don’t have to be trying so hard to force myself to eat by mouth or wean myself off my tube feed. It is perfectly okay for me to rely on my tube for most of my nutrition and only eat when I feel up to it.

I had felt like I had to be trying as hard as possible to get back to eating like a ‘normal’ person. It was so stressful and frustrating, not to mention painful for my dysfunctional stomach.

I feel so relieved to know I can relax and stop trying so hard.

My gastroenterologist also upped the settings on my gastric stimulator implant. Cyborg tune-up!

I will be starting physical therapy soon, which I hope will be helpful. My Marfan Syndrome has been causing chronic joint pain all over my body, and it has been getting worse lately.

The summer heat has been rough, but we are getting our AC system that is older than I am replaced this week! Hurray for air conditioning! The guy we talked to about it was really nice and since I have a medical condition that doesn’t do well with heat he promised to get a crew out to us first thing tomorrow morning.

Meanwhile, J and I are going to find somewhere to hang out today that isn’t sweltering hot. Possibly a friend’s house, or a movie theatre.

Hello Internet. I am your friendly neighborhood cyborg!

Welcome to my little blog.

I have been doing this whole chronically-ill-young-adult thing for awhile now, and I thought maybe some of my experiences could help someone else out there or make them feel less alone.

I live with Marfan Syndrome, Dysautonomia w/ Gastroparesis, Hypothyroidism, and Celiac Disease. It took me a long time and a lot of self-advocacy to get properly diagnosed with all of those conditions. I hope to write posts on a vast amount of topics related to my experiences with chronic illnesses.

And cat pictures. There WILL be cat pictures. My cat Ollivander is a fantastic floofball that I must share with the world. He is my dedicated little sidekick.

10155737_10203986177998875_1949390628_n[1]

[image description: picture of me from a couple years ago with short, blue hair; sitting on a couch. I am holding my long-haired, pumpkin and cream colored cat, named Ollivander.] Photo taken by my cousin.